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Dear
Angels' Place,
I just wanted to send you a note to tell you how much we
appreciated all that Angels' Place does. We appreciate so mush
all the kindness you show Lisette. Having a volunteer gave us
a great rest from taking care of Lisette and allowed us to get
projects done around the house. At holiday times you always
remember to recognize Lisette and the rest of our family. This
makes dealing with this terminal illness so much easier.
Lisette love her "Spinoza Bear", and when she is
happy, we are all happy. Thanks so much!
Lisette was born on April 26, 1997, a seemingly normal baby
following a perfect pregnancy. It was at the age of 5 months
that we noticed a mark delay. Lisette was diagnosed with
Canavan Disease, a rare neuro degenerative brain disease that
causes brain swelling and lack of myelin.
Lisette, now almost four years old, cannot eat or drink or sit
up. She is fed by a feeding tube and has a wheel chair. Her
communication is infantile. She cry's, coo's and laughs.
Lisette is usually happy and playful when she is healthy. She
adores her little brother Leo, she loves to go to school where
she is in a special program.
When Lisette is sick, she needs 24-hour attention. Her
breathing often becomes labored, and she is unable to
forcefully cough to bring up secretions. She is weak to cold
and flues and other illnesses that normal children can fight
off. We often have to take time away from our jobs and other
child, Leo to care for Lisette.
The Angels' Place home would provide a loving family environment
for Lisette and her family to rest, recuperate and be within a
supportive community of volunteers and other professionals. It
would provide a safe place for our family to go to grieve loss
and to heal. At times we have felt alone in our battle with
Lisette's illness. Angels' Place must have additional finding
to assist families like ours who are in crisis due to sick or
dying children. Thanks!
Sincerely,
Desiree & Douglas 2/14/01
Parents of Lisette
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